HHS Adopts Recommendation to Screen Newborns for Heart Defects : RushPRNews - Newswire & Global Press Release Distribution

 
Bookmark and Share

HHS Adopts Recommendation to Screen Newborns for Heart Defects

September 22, 2011

HHS Adopts Recommendation to Screen Newborns for Heart Defects

Washington DC (RPRN) 09/22/11 — Newborn Coalition Applauds Action that Will Save Lives

The Newborn Coalition applauds an announcement from United Stated Secretary of Health and Human Services Kathleen Sebelius today that formally adopts the recommendation to add Congenital Cyanotic Heart Disease (CCHD) to the Recommended Uniform Screening Panel.

The announcement addressed the public health importance of early detection of heart defects, and comes almost a full year after the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) voted to recommend all newborns be screened for CCHD. 

Heart defects are among the most common birth defects and are the leading cause of birth defect-related deaths.  Congenital heart defects occur in 1 in 100, or one percent of live births. Approximately 25 percent of those are classified as critical CHD, requiring intervention in the first weeks or months of life. 4,000 U.S. infants die each year from heart disease.  Diagnosing heart problems in newborns is often difficult with clinical examination alone – and detecting CCHD after discharge from the nursery is associated with significantly higher rates of heart-related morbidity and even death. The Secretary’s statement recognizes the use of pulse oximetry as a screening tool is a simple, non-invasive, low-cost method to help detect hidden heart problems in newborns. 

“This is a historic day for babies and families.  We commend the Secretary and her advisory committee, along with countless advocates, medical professionals and public health leaders for recognizing the vital impact of universal screening for critical heart defects. Simply put, fewer babies will be sent home from the hospital undiagnosed – and lives will be saved,” said Jim Bialick, Executive Director of the Newborn Coalition.

The Secretary’s action is expected to encourage states, health care facilities and clinicians to provide this screening and continue to improve the knowledge base and implementation tactics.  It also directs the National Institutes of Health (NIH) to fund research activities, and the Centers for Disease Control (CDC) to fund monitoring activities and HRSA to guide the development of emerging screening standards and educational tools.


“The only thing worse than having a newborn diagnosed with heart disease is having a newborn go undiagnosed with heart disease,” said Annamarie Saarinen, board chair of the Newborn Coalition, and mother of 2-year-old Eve, CCHD survivor.  “We were privileged to participate in the federal working group convened by HRSA – along with many skilled and passionate medical professionals, pediatric health organizations, public health leaders, and advocates.  We believe much of the early work laid the foundation for states to more fluidly adopt this screening.” 

The federal expert working group report has been published online in Pediatrics can be viewed here: Newborn Screening for Heart Defects

HHS Adopts Recommendation to Screen Newborns for Heart Defects
Using Pulse Oximetry Recommended.  The report has already been leveraged by states such as New Jersey, which recently became the first state in the country to protect the health of newborns from potentially life threatening heart defects by requiring universal pulse oximetry screening.  Several other states have legislation pending or have implemented pilot programs to screen newborns for heart defects as a standard of care.

The full letter from Secretary Sebelius can be viewed on the SACHDNC website:

http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/index.html

 

More about the Newborn Coalition

The Newborn Coalition (www.newborncoalition.org) serves as an unrelenting advocate for infants and families.  The coalition leverages health IT and technology innovation to improve outcomes and reduce disparities for the newest, most vulnerable citizens. Co-founded by the mother of a baby diagnosed at 48 hours old with congenital heart disease, the Coalition has a national imprint that supports increased understanding of newborn health issues and risk factors while helping improve access to quality care and resources through vital research and pilot projects.

Newborn Coalition - 750 9th Street NW, Suite 750, Washington DC 20001

Media Contact Name: Jim Bialick, Newborn Coalition
Media E-mail:
Media Phone: 858-353-3581
Media Web Address: www.newborncoalition.org
Main image credits: Annamarie Saarinen
Body image credits: Annamarie Saarinen
About the author:

RushPR News is a social media newswire service created to help you with content creation and distribution to news outlets and social media networks. RushPRnews can also assist you with your web strategies with experts advices and strategies at an affordable cost. Write us at news@rushprnews.com

Click here to see all news from this author/company

Filed Under: BREAKING NEWS, FDA- Pharmaceutical news, Featured, Health and Fitness, Lifestyle, PRESS RELEASE

RUSH PR NEWS newswire and press release services at rushprnews.com / Anne Howard annehowardpublicist.com

Content- Legal Responsibility - All material is copyrighted - You may repost but you MUST link back to the original post on your page and acknowledge Rush PR News as the news source. Rush PR News is not legally and/or morally responsible for content of press releases, opinions expressed or fact-checking.

Rush PR News cannot be held legally responsible for material published and distributed through its newswire service or published in its press-room and therefore cannot be sued for published material. Third-party must be contacted directly to dispute content.

Rush PR News is not the contact for material published.

RSSFeed PRESS & SOCIAL MEDIA RELEASES

Twenty dollars discount on your October press release submission order

SAN FRANCISCO 09/29/14 ·  Thank you for making September such a great...

Pailton Engineering unveils brand new image at IAA Show

Hanover, Germany 09/26/14 · Forward-looking company Pailton Engineering is re-branding itself as...

Breast cancer survivor dragon boat cheque presentation to contest winners Sistership Calgary

Hamilton, Ontario 09/25/14 · Media Advisory Breast cancer survivor dragon boat cheque...

Albi Homes And Brookfield Residential Calgary Distinguished With Inaugural Avid Home Quality Awards

Calgary, Alberta 09/22/14 · Albi Homes And Brookfield Residential Calgary Multi-Family Division...

BYStudio packaging design company in Los Angeles CA Launches New Package Design Company Website

Los Angeles, CA 09/16/14 · BYStudio packaging design company in Los Angeles California...

NEW ACCOMMODATIONS AT STE. ANNE’S SPA VILLAGE

GRAFTON, ONTARIO 09/16/14 · Ste. Anne’s Spa has opened the doors to...

Back Bends & Chest Openers: A Workshop at Studio Blue Yoga

Toronto, ON 09/11/14 · Back Bends to Extend the Spine & Expand...

The Think Pink Challenge; Reel Men Fish Pink

Hempstead, Long Island, NY 09/09/14 · Eposeidon Outdoor Adventure, Inc. kicks off a campaign...

Yoga Retreat for Breast Cancer Survivors at Ste. Anne's Spa

GRAFTON 09/04/14 · In honour of breast cancer awareness month, Ste....

Rice Bucket Challenge has raised 3.5 Million for the Hungry

Tanauan, Philippines 09/03/14 · The Rice Bucket Challenge announced today that donations...

Ultraseal International to exhibit at Ankiros 2014

Coventry, UK 09/03/14 · Ultraseal International, a global leader in providing solutions...

Unconstitutional wire tape:a personal testimonial

N Las Vegas 09/02/14 · Hello my name is Sumayah Hodges, I live...

Swift Travel Deals Set To Become Multi-Million Dollar Agency!

Miami, FL 09/01/14 · Lux Millionaire Magazine/ --If you are looking for a...

New Online Scheduling Platform That Helps Appointment Based Businesses

London, UK 08/30/14 · Book the Slot (http://provider.booktheslot.com/signin) has recently been piloting...