January 27, 2012
|Pulse oximetry screening for heart defects (CCHD)|
Washington, DC (RPRN) 01/27/12 — Initiatives Aimed at Improving Health Outcomes and Reducing Disparities for the Youngest Patients
The Newborn Coalition today announced its 2012 policy priorities addressing immediate advocacy objectives for leveraging technologies in support of newborn health at the local, state and federal level.
In 2011, the Newborn Coalition focused its efforts on the securing a federal recommendation from the U.S. Secretary of Health and Human Services that all newborns be screened for Critical Congenital Heart Disease (CCHD). Heart defects are the most common of all birth defects, impacting 1 of every 100 infants. The coalition provided key testimony, worked with 4 different federal agencies and provided briefings to more than 75 congressional offices. The recommendation has been endorsed by the American Academy of Pediatrics, the American Heart Association, and the American College of Cardiology.
In 2012, the coalition’s policy goals focus on implementing the Secretary’s recommendation, as well as fostering an environment where innovative and impactful technologies can be applied to increase access to pediatric cardiology services and specialty care while encouraging health IT enabled care coordination for newborns.
“Advocacy is a vital part of our mission, educating and collaborating with the public policy, public health, provider, parent, and legislative communities on key issues that impact the health and well-being of newborns and infants,” said Jim Bialick, Executive Director, Newborn Coalition. “The priorities help us stay on top of immediate needs and track progress in initiatives that address critical challenges in newborn health.”
The priorities are compiled with input from the coalition’s advisory board and expertise from the organization’s numerous partners in the medical, academic, research, and public policy communities. 2012 priorities include:
The Newborn Coalition will also be working collaboratively with federal agencies, national associations and the private sector to initiate additional pilot and demonstration projects to support federal standards and projects aimed at increasing early detection of health conditions, improving care, and accelerating adoption of health technologies.
"Babies in the United States have a higher risk of dying during their first month of life than do babies born in 40 other countries,” said Mary Ellen Mannix, founder of James's Project, national patient health and safety advocate, and Newborn Coalition Advisory Board member. “Over the past year, the coalition has facilitated an unprecedented level of collaboration with the singular goal of improving the healthcare of newborns and infants. These efforts are already resulting in lives saved and will continue with these priorities in 2012.”
More about the Newborn Coalition
The Newborn Coalition (www.newborncoalition.org) leverages health IT and technology innovation to improve outcomes and reduce disparities for the newest, most vulnerable citizens. Co-founded by the mother of a baby diagnosed at 48 hours old with congenital heart disease, the Coalition has a national footprint that supports increased understanding of newborn health issues and risk factors while helping improve access to quality care and resources through vital research and pilot projects.
Newborn Coalition - 750 9th Street NW, Suite 750, Washington DC 20001
About the Newborn Foundation
The Newborn Foundation is an international nonprofit working specifically to leverage health IT and medical technologies to improve access and outcomes while reducing disparities for newborns. Co-founded by the mother of a child diagnosed and treated for critical congenital heart defects as a newborn, the organization has been integral in the policy development, adoption and implementation of technologies for early detection, intervention and care of the youngest patients, including the landmark addition of universal newborn screening with pulse oximetry for heart defects and other serious health conditions. Internationally, the Newborn Foundation is conducting vital newborn health projects in the UK, Morocco, the Philippines and rural China, impacting the hardest to reach and most underserved babies.
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