Newborn Coalition Announces 2014 Agenda : RushPRNews - Newswire & Global Press Release Distribution

 
Bookmark and Share

Newborn Coalition Announces 2014 Agenda

September 19, 2013

Newborn Coalition Announces 2014 Agenda

Washington, DC (RPRN) 09/19/13 — Harnessing Technology to Improve Outcomes and Reduce Disparities for the Youngest Patients

In coordination with National Health IT Week and the 50th Anniversary of Newborn Screening, and Infant Mortality Awareness Month, the Newborn Coalition today announced its 2014 policy priorities addressing immediate objectives for leveraging health IT, medtech and biotechnology in support of newborn health, including:

Early Detection + Intervention – secure reauthorization of the Newborn Screening Saves Lives Act (HR 1281), a vitally important law for early detection and treatment of newborns with critical health problems. Ensure the Act includes provisions for bolstering health IT infrastructure and hospital data interoperability between providers and public health departments. Continue to support provider and public health with educational and policy resources, particularly for the implementation of new tests and methods for early detection, diagnosis and follow-up, such as newborn heart screening using pulse oximetry.

Newborn Electronic Health Record – facilitate the implementation of the multi-center, multi-state “Growing Needs” project, where hospital newborn screening data serves as the foundational piece and first electronic birth notification and vital registration for state departments of health. The Newborn Electronic Health Record then serves as an organic hub of information for all reportable conditions, screening information, immunizations and disease/disorder surveillance.

Care Across Borders – advocate for bi-partisan policies and IT-enabled systems that allow physicians to use technology to collaborate across facilities, health networks, state lines and Medicaid borders in support of newborn health.

Foster Innovation, Technology + Interoperability – develop and advocate for policies and programs that facilitate timely and efficient regulation, encourage innovation, as well as safely bridge the gap between consumer technologies and medical devices that advance care for neonatal and pediatric patients.

The Newborn Foundation| Coalition will build upon the significant expansion of its state and federal advocacy efforts. In 2013 the Coalition took part in more than 150 briefings with Members of Congress and staff, as well as testified before the Energy & Commerce Committee significantly raising the visibility of newborn health issues on Capitol Hill.

"Babies continue to be among the most at-risk health populations. Connecting babies with the care they need is a critical demand, and we believe Health IT, telehealth and mHealth can enable that sort of access and improved

Newborn Coalition Announces 2014 Agenda
care,” said Jim Bialick, Executive Director, Newborn Coalition and Newborn Foundation. “Leveraging these priorities, we continue to collaborate with the private sector, decision-makers here in Washington, D.C., as well as public health, provider, research, NGO and advocacy communities on key issues that impact the health and well-being of newborns and infants.”

The priorities are compiled with input from the coalition’s advisory board and expertise from the organization’s numerous partners in industry, medical, academic, research, and public policy. The Newborn Foundation actively develops and implements pilots and demonstration projects that accelerate the adoption of health technologies and leverage the Newborn Coalition’s policy efforts. 

In 2013, the Newborn Foundation | Coalition focused on the continued policy and educational resource work required to implement newborn screening for the Critical Congenital Heart Disease (CCHD), the most common and deadly of all birth defects. The Newborn Coalition’s cchdscreeningmap.org shows an additional 21 states enacted CCHD legislation or statutorily required screening in 2013, bringing the total number to 31. When the Newborn Coalition spearheaded efforts in 2010, the number of U.S. babies screened for heart defects was less than 1/3 of one percent. Today, nearly 1.2 million, or 30 percent are being screened in states, regions and institutions that have added the test, with that number anticipated to more than double in 2014, as additional states with recently enacted laws begin universal screening at their hospitals. The Newborn Foundation will continue it’s current initiatives, including pilot project follow-up to the inaugural China Summit on Newborn Screening and Early Detection of CHD, in collaboration with the China Office for Maternal and Child Health Surveillance, international NGOs, numerous state departments of health, and all federal health agencies that touch the healthcare ecosystem.

About the Newborn Coalition

The Newborn Coalition 501(c)(4) (www.newborncoalition.org) and the Newborn Foundation (www.newborn-foundation.org) 501(c)(3) and are among the only multi-national organizations leveraging health IT, medtech and biotechnology innovation to improve outcomes and reduce disparities for newborns. The organizations have created a measurable footprint that supports increased understanding of newborn health issues and risk factors while helping improve access to quality care and resources for the newest, most vulnerable patients through vital research and pilot projects.

Newborn Coalition Announces 2014 Agenda
Newborn Foundation hosts Inaugural China Summit on Newborn Screening:

Media Contact Name: Jim Bialick
Media E-mail:
Media Phone: 202.559.4551
Media Web Address: www.newborncoalition.org
Main image credits: Newborn Foundation
Body image credits: The U.S. House Energy Subcommittee on Health
Click here to see all news from this author/company

Filed Under: BREAKING NEWS, BUSINESS NEWS, Health and Fitness, PRESS RELEASE

RUSH PR NEWS newswire and press release services at rushprnews.com / Anne Howard annehowardpublicist.com

Content- Legal Responsibility - All material is copyrighted - You may repost but you MUST link back to the original post on your page and acknowledge Rush PR News as the news source. Rush PR News is not legally and/or morally responsible for content of press releases, opinions expressed or fact-checking.

Rush PR News cannot be held legally responsible for material published and distributed through its newswire service or published in its press-room and therefore cannot be sued for published material. Third-party must be contacted directly to dispute content.

Rush PR News is not the contact for material published.

RSSFeed PRESS & SOCIAL MEDIA RELEASES

Zikto taking award-winning Arki to Startup Nations Summit

Seoul, Korea 11/22/14 · Zikto taking award-winning Arki to Startup Nations Summit The...

The End of Transparency? Don't be a fraud target

Carrollton, TX 11/18/14 · - Over the years, progressive and productive societies...

Ultraseal international in finals of Midlands Business Awards 2015

Coventry, UK 11/14/14 · Ultraseal International, which exports to the automotive supply...

Arki: Hot New Wearable Tech Setting a Cracking Pace on Kickstarter

San Francisco, CA 11/14/14 · Update for November 21: 412 Backers $90,034 pledged...

UpWest Labs Unveils Details of Its Eighth Batch of Startups, Ranging From Genetics to 3D Design

Palo Alto, California 11/11/14 · Accelerator continues to support innovative entrepreneurs with its...

Modern Casting Impregnation helps automakers to avoid warranty claims on engines

Novi, MI 11/11/14 · Automakers can save money and avoid costly warranty...

The Evolution of Walking: Wearable Tech steps up to a new level

San Francisco, CA 11/11/14 · Arki: Finally Wearable Meets Fashion – Wearable technology is one of 2014’s...

GeneSegues Awarded $1 Million Phase II NIH/NCI Research Contract for Nanoencapsulated RNAi Cancer Therapeutic

MINNEAPOLIS, MN 11/10/14 · Highly Competitive NIH Program Validates Potential of GS-10...

More Than 400 .Onion Addresses Targeted as Part of Global Enforcement Action on Tor Network

WASHINGTON 11/07/14 · More Than 400 .Onion Addresses, Including Dozens of...

Learn about Wine in Your Pjs - A New Kind of Wine Class

SAUSALITO, CA. 11/04/14 · The Wine Key announced today it's first virtual...

XCEL Professional Services Has Made a Huge Change to Move Our Company Forward

Calgary, AB 11/04/14 · Introducing Rob Hay: The New President of XCEL...

Furries and Despair – two-man show at Canessa Gallery, November 7 Wild is beautiful

San Francisco, CA 11/03/14 · The show  "Furries and Despair" at Canessa Gallery...

Ristech Completes Acquisition of Kirtas Technologies Inc.

Victor, NY. 11/03/14 · With the acquisition of Kirtas Technology, Ristech increases...

Signed, sealed, delivered: Email best practices

San Francisco, CA 10/31/14 · Email is the original Web app. Born in...